PSC Patient Registry

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B

Term	Definition
Biospecimen	Samples of urine, blood, tissue, cells, DNA, RNA, or protein, to be stored in a biorepository for future research

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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project.