PSC Patient Registry

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Term	Definition
GRDR	Global Rare Diseases Patient Registry and Data Repository; http://grdr.info; the PSC Partners patient registry is one of the rare disease patient registries under the umbrella of the GRDR

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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project.