PSC Patient Registry

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Term	Definition
Assent	Agreement by a minor or other person not competent to give legally valid informed consent, that is, a child or cognitively impaired person to participate in the registry

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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project.